Thursday, October 23, 2008

Happiness Is....

I was tagged by sweet Kira to put this meme on my blog. So here goes!

Six things that make me happy:

1. Family
2. Friends
3. My dogs
4. Disneyland
5. Shopping
6. Wine Walks (it's a local thing)

So... what are YOUR six happy things?

As an aside: When I was in kindergarten, our teacher asked us all to describe what "Happiness is... " She then typed up our replies and sent them home. (My mother kept this; that's how I know. Trust me, my memory isn't that good!)

Most of the kids wrote normal things, like: "Happiness is... friendship"

or

"Happiness is... kisses from your mom."

But mine?

"Happiness is... SKIING."

This coming from a kid who didn't see snow until she was 13.

What can I say. I've always been... unique.

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Tuesday, October 21, 2008

9:40 a.m.: October 23, 1996


At that time, on that date, my brother's life changed forever. This Thursday marks the 12th anniversary of his traumatic brain injury.

Paul had always been my favorite brother, despite our age difference of 16 years. For the first 44 years of his life, he was independent, an avid reader, a follower of news & current events, extremely athletic, an amazing cook, very loving (though not obvious about it), utterly devoted to his dogs, and a complete smart aleck. He would do things for people in a very 'quiet' manner--never wanting recognition or even acknowledgment. He was the epitome of independence. And athletic? WOW. In 1976, he was the Southern California Golden Gloves champion for featherweight boxing. Around that same time, he was featured on ABC'S Wide World of Sports for knocking out his opponent in the first few seconds of the first round. He was fast and powerful, despite his slight build. In every way, I admired and looked up to Paul.

And on that dreary, overcast October day, he was a pedestrian who was hit by a speeding car--22 miles per hour over the speed limit, to be exact. Paul was thrown 80 feet, landing on his head. When paramedics arrived, he had no pulse.

He was airlifted to a hospital 90 miles away, and spent a month in a coma. I learned that no one ever really spends more than a month in a coma; after that, their eyes open and they are in a vegetative state (if they're not responsive, of course). Did you know that? Neither did I. It's not like the movies where they open their eyes and suddenly begin conversing. Not like that at all, unfortunately. Suffice it to say, I learned more than I ever really wanted to know about brain injuries.

For six months following, Paul was in a persistent vegetative state. He would look around, but didn't seem to be "there." He had no muscle control, so he couldn't even hold his own head up in the wheelchair. He had to be secured, with a belt around his forehead attached to a board, to keep him upright. He was in a permanent fetal position, his legs drawn up tight to his chest, due to the injury. And he would drool. I'm pretty sure there's nothing my poor mother ever went through (not even my other brother's brain surgeries, as a child) that compared to seeing her grown son in that state. Here she was, in her 70's and widowed, having to travel hundreds of miles to a neuro care home to see him like that. Over the first two years, she & I made the trip--often with my 1-year-old son in tow--every other Friday. We would talk on the way there about our hopes for Paul, and cry on the way home. I think, by the third year, we finally stopped crying so much. But it was never easy. It wasn't like a death; there was no closure. And very little hope. I have found that the grieving never really ends.

To add salt to the wound, my 49-year-old sister killed herself three years after Paul's accident, also in October.

Today, my brother still resides in the same care home. He's no longer vegetative, thank the Lord, but he can not speak, eat, or walk. He is confined to his bed or a wheelchair, and fed through a tube in his stomach. He is extremely alert (consistently gets 100% on spelling tests!) but has no short-term memory. He doesn't remember that our sister passed away, or that our mother has since. So we just try not to mention them at all. (For awhile, every time he would realize they were deceased, he'd mourn all over again.) I wonder if he is confused as to why our mother no longer visits. When we visit, he remembers us, but he doesn't remember the visit a few hours after we have left when the staff asks about it. I wonder if he thinks we are never there... that he is just alone with his caregivers, 24/7. I have no way of knowing.

These are just some of the things that haunt me.

Paul's life is the true meaning of a fate worse than death.

On a lighter note, prior to Valentine's Day 2007, he insisted (through pointing to letters on a chart) that he needed to go shopping for a gift for me. It was the first time in his eleven years there that he'd ever suggested such a thing, so I can't imagine what prompted it. His wonderful caregivers took him to the mall, and he picked out the earrings that are in the picture above. More importantly, though, he hand-wrote that Valentine's card for me. I still cry looking at it. That alone was one of the very best gifts I have ever received.

Thanks for "listening"; it's therapeutic to write about Paul. And, please--hold your loved ones close. Remember to keep things in perspective, when you can. Life can and does change in the blink of an eye. Be grateful. If there's one thing I've learned from all of this, it's to be grateful for the everyday things in life--and for the people in it.

Also, please pray for Quince--fellow blogger Rebeckah's dear friend who is going through his own personal hell after suffering a very debilitating stroke. He needs all the positive thoughts and prayers he can get right now, and so do his wife and small children. Please don't forget about him as he works at recovering. He will need your prayers for a long time.

And if you have time for an extra prayer once in awhile? My brother could still use some, too.

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Monday, October 20, 2008

Stealing Erin


I was listening to the song "Stealing Cinderella" on my way to work this morning and was envisioning it someday playing during a slideshow at my daughter's wedding. I was thinking about what pictures of her could accompany the lyrics: The one, at age 7, dressed up as Cinderella for Halloween; next, on her very first bike without training wheels; then, in the summertime at the pool... You get the idea. I was nearly in tears by the time I got to work, thinking about how I would essentially be losing my baby on her wedding day. Oh, and by the way? She's 9. How am I going to handle this when it really happens? How does any parent deal with it all?! Why do I even think about this?


Two years ago in November, I sat at my ex-husband's wedding with tears in my eyes over the song that accompanied HIS lifetime of pictures. Part of the lyrics were, "God blessed the broken road that led me straight to you." All I could sit there thinking was, OH, GOOD GOD! I am the broken road! I AM THE BROKEN ROAD! And then I felt guilty. How many years of his life had I wasted, I wondered, when he could've been with someone he was better suited to? But no, wait--I reassured myself. It was all working out. We have a beautiful son together, we both have amazing spouses, we're friends with each other now... so it's all good, right? But no, I AM THE BROKEN ROAD! Two years later, and I'm still thinking about that. How long CAN a person hold onto guilt, huh? Don't bother answering that.

Anyway--back to my original point. Do you ever worry about not hanging onto today enough? Do you worry about tomorrow so much that you end up taking away from what you have today? My mom used to always shake her head and say, "Oh, Susan--you die a million deaths."



Stealing Cinderella


I came to see her daddy for a sit-down, man to man

It wasn't any secret I'd be asking for her hand

I guess that's why he left me waiting in the livingroom by myself

with at least a dozen pictures of her sitting on a shelf


She was playing Cinderella

She was riding her first bike

Bouncing on the bed and looking for a pillow fight

Running through the sprinkler with a big popsicle grin

Dancing with her dad, looking up at him

In her eyes I'm Prince Charming

But to him I'm just some fella

riding in and stealing Cinderella

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